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Easing the transition to an extraordinary life

For the Patient: How did you get here? Every patient wonders that from time to time. Regardless of your situation, it is hard to be diminished, hard to ask for help and hard to not feel yourself. In this section, we’ll share approaches and ideas that might make things easier, and learn from other people’s experiences. We understand the deep desire to “feel normal” again, and we hope to get you back on your way to the new you. Try to take it one day at a time and don’t be too hard on yourself.

The Genetic Information Nondiscrimination Act

     Do you have the Breast Cancer gene, BRCA-1 or BRCA-2? Do you have a family history that makes you think you should be tested? Know your rights.   You should be aware of the Genetic Information Nondiscrimination Act (GINA), which prohibits discrimination based on genetic information when it relates to health insurance and employment. View Post >

Walking on Water- Love is Patient and Kind

We are proud to share today’s entry from our beautiful Youth Editor, Emily in her ongoing series, Walking on Water – Living with Hydrocephalus.   With Valentine’s Day fast approaching, I thought I would write about something I never thought about before- dating someone and having to tell them about my hydrocephalus. I recently began View Post >

Amy F. – No Pain, No Gain

No pain, no gain. How many of you have heard that phrase as it relates to your workout? Gotta push those muscles to burn the fat. Work through the pain and you’ll see the results. If it doesn’t hurt, you’re not doing it right. Well, what if we flip that phrase a bit on its View Post >

The Hidden Costs of Chemo

  Hello friends. Today I’d like to share an article that I wrote which was recently published on Healthline.com about the hidden costs of chemotherapy. If you have just found out that you need treatment, we hope that we can help you navigate through the unexpected costs and give you some resources to ease the View Post >

Perseverance by Amy F.

   Today’s new post from Amy F, our Featured Contributor…     per·se·ver·ance – continued effort to do or achieve something despite difficulties, failure, or opposition Hello followers and sorry that I have been MIA for a while.  I have been going through a pretty rough patch and words of inspiration and/or motivation have not been View Post >

5 Warning Signs of Alzheimer’s

  Do you have a family history of Alzheimer’s? Or are you worried that you are getting more forgetful? These five symptoms might help point you in the right direction.     Over 30 million people worldwide are living with Alzheimer’s disease. Use this list to help to distinguish between the normal memory loss that View Post >

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